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Launch
Haemophilia Diagnosis Training for Doctors Launched
A standard set of peer reviewed guidelines will be compiled
to help the trainers accomplish this goal
Dr Anupam Sachdeva |
As part of the effort to improve haemophilia care in India,
the Novo Nordisk Haemophilia Foundation (NNHF) has collaborated with Dr Anupam
Sachdeva, Senior Consultant, Department of Paediatrics, Sir Ganga Ram Hospital,
New Delhi under a project titled 'Capacity Building and training project in
Haemophilia for paediatricians.'
Explaining the need for this project, Dr Sachdeva, says, "In India, only
three centres are accredited to provide a paediatric haematology oncology fellowship,
Sir Ganga Ram being one of the three. Thus the vast majority of haemophilia
patients in India are cared for by paediatricians who are not adequately trained
in caring for children with bleeding disorders especially since it requires
a multidisciplinary approach."
Protocols for the standard management of haemophilia exist and have been used
for a long time in the west. India is a vast country with inequitable distribution
of healthcare resources, hence it requires developing its own protocols so that
the delivery of healthcare to persons with haemophilia can be streamlined and
made more efficient.
The main aim of the project is to devise a programme for the training and sensitisation
of the paediatricians to the disease, to ensure that appropriate care according
to the set guidelines will take place to the benefit of people with haemophilia."
A standard set of peer reviewed guidelines will be compiled to help the trainers
accomplish this goal. This is to be achieved using the Training of Trainers'
concept (TOT) where at a first workshop (in December) will have about 40-60
paediatricians. They will be the faculty for further workshops in various parts
of the country. By this, 400-500 paediatricians will be trained annually (each
workshop to train 40-50 physicians)
In the first phase of this project (which started in December 2009), a core
group of paediatricians and health providers will be identified who will act
as faculty to write on the various aspects of haemophilia and make modules and
presentations on these aspects which will be peer reviewed by the rest of the
group.
In the second phase (which will begin in February), the doctors trained in phase
one will conduct workshops across India. "In all, 30-40 workshops will
be held over two years. We will train around 1,000 experts across country,"
says Dr Sachdeva positively.
He adds that on completion, the doctors will be awarded certificates. This certificate
will be renewed after they take an annual test. A haemophilia performa (India
specific) website will also be launched in February to assist these doctors.
Sonal Vij
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