Novo Nordisk India partners with ORDI for Racefor7
Racefor7 promotes awareness, encourages early diagnosis, and calls for improved access to rare disease care across the country
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Browsing Tag
rare diseases
Building care pathways for rare diseases: From diagnosis to lifelong management
In India, rare diseases are not so rare. It is estimated that around 70 million Indians live with one of more than 7,000 rare…
Genomics and AI set to transform rare disease diagnosis and therapeutics
Dr Rahila Sardar, Co-founder and CEO, Vgenomics India talks about the role of AI and genomics in diagnosing the rare diseases
Indian Research Institutions and Oxford Nanopore collaborate to establish Genomic CoE
Institutes under the Department of BioTechnology (DBT) sign Letters of Intent with Oxford Nanopore to establish next-generation…
Rare disease treatment: Look at emerging therapies and medications
Dr Anup Rawool, Consultant in Clinical and Cancer Genetics at Sahyadri Hospitals, Pune, discusses innovative therapies and…
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Sheffield researchers contribute to discovery of 69 new genes linked to rare diseases
A study using data from the 100,000 Genomes Project identified previously unknown genetic variants associated with rare diseases,…
India’s first National Rare Disease Conference concludes in Mumbai
Bai Jerbai Wadia Hospital hosts ‘Cure & Care for the Rare,’ highlighting advancements, policy frameworks, and patient support…
The long wait and the struggle of families battling NF1- A rare form of Neurofibromatosis
Dr Ratna Devi, CEO, DakshamA Health; Director, PAIR (Patient Academy for Innovation and Research); and Steering Committee Member…
10th Edition of RaceFor7 to flag off in 21 cities across India
Racefor7 2025 aims to drive policy-level impact and enhance access to treatment across the country
Princess Royal opens pioneering Gene Therapy Innovation and Manufacturing Centre
The new facility aims to accelerate gene therapy development for rare diseases and enhance clinical trial access