K J Somaiya Hospital and Research Centre inaugurates ACOHRD
The main focus of the Center is diagnosis, treatment and clinical research in both benign and malignant hematological disorders
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Browsing Tag
rare diseases
Karnataka launches new research centre for rare diseases
The activities to be undertaken at the research and training unit for rare diseases include comprehensive genetic counselling…
Takeda expands its rare diseases portfolio in India with the launch of Adynovate
Adynovate in combination with MYPKFIT®, FDA approved application offers personalised and interactive prophylaxis treatment option…
MedGenome launches VarMiner to detect genetic variants for rare diseases and inherited cancers
The software can predict and rank a pathogenic variant in 90 per cent of rare diseases cases with no or minimum manual…
Rare disease treatment policy in India: Accessibility, affordability and acceptability are key
On Rare Disease Day, Anjali Taneja, Associate Director, Science Policy Initiative; Alok Bhattacharya, Professor and Head of the…
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Members of parliament seek health minister’s intervention to prioritise treatment of group 3(a)…
Highlights that lack of treatment support has put the lives of 200 children at risk
Health minister chairs meet with corporates to discuss voluntary crowd-funding for rare diseases and…
Globally, eight per cent of the population suffers from rare diseases; 75 per cent of the survivors are children which makes…
Redressing the health inequity between rural and urban areas
Dr Ramaiah Muthyala, President & CEO, Indian Organisation for Rare Diseases, and associate professor, Experimental Clinical…
FDA Approves New Therapy for Dravet Syndrome
Fintepla labelling includes a boxed warning stating the drug is associated with valvular heart disease (VHD) and pulmonary…
Dr Lal PathLabs collaborates with ORDI to sensitise India on rare diseases
The association is to raise awareness for the 7,000 documented rare diseases across nine cities