Advanced therapies for rare disorders in India
Dr Tejinder Kataria, Chairperson, Radiation Oncology, Cancer Care, Medanta, Gurugram highlights that the potential of advanced…
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Browsing Tag
rare diseases
US approves first gene therapy for children with rare genetic disease
Orchard, which was acquired by Japanese pharmaceutical firm Kyowa Kirin for $477.6 million last year, said it will provide details…
How patient engagement is crucial in rare disease management
Dr Atul Mohan Kochhar, CEO, NABH highlights that he last two decades have seen the emergence of new therapies for a few rare…
India’s fight against rare diseases needs more focus on awareness and diagnosis: GlobalData
According to GlobalData’s Pharmaceutical Intelligence Center, the number of 10-year diagnosed prevalent cases of Wilson’s disease…
Expanding access to rare disease medications: Removing barriers
Devashish Singh, Co-founder and CEO, MrMed highlights that there are more than 7,000 recognised rare diseases, and new ones…
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Harnessing generative AI to enhance rare disease education and awareness
Sriram Raghunathan, Sriram Raghunathan, Digital Innovation & Strategy Principal, Marlab explains how generative AI offers…
9,675 patients enrolled since November, 2019 on National Registry for NRROID portal: MoHfW
For FY 2023-24, Rs. 92.84 Crore allocated for treatment of rare disease’ patients in designated Centres of Excellence under…
Government announces custom duty relief for rare disease drugs
While exemptions have already been provided to specified drugs for treatment of Spinal Muscular Atrophy or Duchenne Muscular…
The challenges of diagnosing rare diseases in LMIC
Dr Sheetal Sharda, Clinical Geneticist and Director of Genomics Division,, Neuberg Centre for Genomic Medicine (NCGM) highlights…
An appeal for a more inclusive, representative, and accessible National Rare Disease Policy
As we observe the World Rare Disease Day on 28th of February, Clarinda Cerejo stresses that in the absence of clear guidelines for…