The consultation paper provides a detailed discussion on the need for the policy, its scope, key elements under it, and proposed approach for its governance structure under the ambit of Ayushman Bharat Digital Mission (ABDM)
The National Health Authority (NHA) on has released a consultation paper on the proposed Health Data Retention Policy.
The consultation paper provides a detailed discussion on the need for the policy, its scope, key elements under it, and proposed approach for its governance structure under the ambit of Ayushman Bharat Digital Mission (ABDM), launched across the country on September 27th this year. It also focuses on how a health data retention policy for ABDM stakeholders will help the healthcare ecosystem.
The Health Data Management Policy released on 14.12.2020 by NHA provided that a health data retention policy may be notified for data fiduciaries to comply with the collection, use, and storage of personal data. The proposed Health Data Retention Guideline/Policy has been envisioned to minimise risks associated with personal health data and to maximize benefits from the usage of this data by ensuring that data retention guidelines are in sync with all applicable legal and regulatory compliances. The NHA will ensure an inclusive engagement with stakeholders, and ensure that all diverse viewpoints are incorporated from concerned stakeholders.
Giving his views on the consultation paper, R S Sharma, CEO, National Health Authority, said, “We are developing the National Digital Health Ecosystem in a consultative manner. Since the premise of ABDM is based on federated architecture, it becomes paramount that there are specific guidelines on data retention so that health data can be stored and shared securely among different ecosystem partners, post consent of the patient.”
Through this consultation paper, the NHA is providing interested stakeholders with information that may be useful to understand the considerations for the proposed policy for India, and its related implications, and seek their suggestions/inputs on health data retention under ABDM.
NHA is also planning to organise a public webinar shortly to provide an overview of the consultation paper.